Research Trends in Palliative Care: Ethical Issues for Researchers and IRBs to Consider: 4th Annual Perry Fine Lecture at West Virginia University

Perry Fine, MD

Pain Research Center
University of Utah School of Medicine
Salt Lake City, Utah

Palliative care research is related to understanding and improving the quality of life of patients near the end of life. Here, Dr. Fine discusses barriers to research in palliative care, appropriate community-based protocol designs, and the role of institutional review boards in addressing ethical and methodological issues pursuant to research in populations with life-threatening conditions.

References

1. Field MJ, Cassell CK. Approaching death: improving care at the end of life. Health Prog. 2011;92:25.
2. Lehan-Mackin M, Herr K, Fine PG, et al. Research participation by older adults at the end of life: barriers and solutions. Res Gerontol Nurs. 2009;2:162-171.Field MJ, Cassell CK. Approaching death: improving care at the end of life. Health Prog. 2011;92:25.
3. Lehan-Mackin M, Herr K, Fine PG, et al. Research participation by older adults at the end of life: barriers and solutions. Res Gerontol Nurs. 2009;2:162-171.
4. Agrawal M. Voluntariness in clinical research at the end of life. J Pain Symptom Manage. 2003;25:S25-S32.
5. Meuser T, Pietruck C, Radbruch L, et al. Symptoms during cancer pain treatment following WHO-guidelines: a longitudinal follow-up study of symptom prevalence, severity and etiology. Pain. 2001;93:247-257.

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